Tuesday, June 8th 2010

Until Next Time,

E

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Sunday, June 6th, 2010

As I am typing, Taylor is laying sound asleep next to me in my bed. I just gave her some medicine rectally in order to stop a seizure she was having. It absolutely breaks my heart to see her so confused and so uncomfortable when she has these. You know, seeing her and Erin go through these really stinks!

I do my best to always look on the bright side…but I promised when writing this blog..I would be authentic and right now…It really sucks!!! My heart breaks. I love these kids more than anyone can imagine. I really do. AND, I truly believe that they are here for a reason…I do my best to focus on that daily…every time I get sad, every time there is an obstacle to overcome, I know that there is a purpose…I just know it. There has to be. I guess that is why I write this blog. Hoping to fulfill their purpose, hoping to give one family a little bit of hope and faith, hoping to make sure my children’s life is full of purpose, hope, and encouragement for others. Again, I have got to believe it is. I often think my family & friend’s think I’m nutty for how passionate I can be at times…but I can’t help it….I just want what every parent wants for their children. I want them to be able to have it all, to be happy, to live their dreams, and sometimes I wish I truly knew what those dreams are. I also wish I had someone next to me that truly understood the pain and frustration. It can lonely at times with these thoughts. I get wrapped up in my own wants and needs at times and it is times like these that kick me in the butt and cause me to change gears to where my priorities and thoughts should focus.

I say all this…because it is times like these when my children hurt and I sit in a house with all three of them feeling like my hands are tied, feeling that life is not fair for them, and feeling angry. These feelings aren’t felt often, but right now they are real and soon shall pass.

Until Next Time,

E

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Monday, May 31st 2010

It’s the ending of a three day weekend and tomorrow will be the start of the last week of the 2009/2010 School Year. I am so ready for the summer! Even though it has been a pretty good school year…I am exhausted and ready for a break and time to get my home together.

Friday was my birthday. I had such a great birthday. I felt so loved by so many through their birthday wishes, and I had a fun party on Friday Evening with some great friends! It really was a great day. I am very lucky to have such great people in my life. I hope I am half as good a friend to them as they are to me.

The kids and I spent Saturday at the pool. We went to one of the Hotel/Casinos here in town where they had a live Acoustic Band playing. It was so nice to lay by the pool and play in the water with the kids. It was a nice relaxing day at the pool!

Yesterday, when I got out of bed…Erin thought she was having a seizure. After observing yesterday & today…she has been having minor seizures on and off. This has concerned me…because usually when she has minor seizures like she has been having…a bigger one soon to follows. Therefore, I haven’t left her side too much. I’m hoping that rest will do the trick and snap her out of the pattern she is used to. I’ll keep you posted.

Until Next Time,

E

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Thursday, April 22nd, 2010

Well, we were really excited about spending the day together. However, God had a change of plans. Jorden was able to get a true sense of what my day looks like. Check out the video and see what happens.

Until Next Time,

E

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Tuesday, April 20th, 2010

CELEBRATION IN ORDER!!!

It’s been nearly 6 weeks since Erin has had any seizures or vomiting spells! This is definitely a cause for celebration!! She is now on a new medicine. It took awhile for her to gradually change her from the old to the new medicine (approximately 2 months). During that time, she still continued to have these daily vomiting spells, so I started to track everything she was eating (as good as I can, since I am not with her at every moment). I started to realize that on the days she eats cereal were the days she seemed to be vomiting more. Therefore, her and I omitted dairy from her diet and I started her on an Isagenix shake in the morning. Since that time she has been seizure free & free of any of those horrible vomiting spells!!!! We cannot celebrate enough!!!

Until Next Time,

E