Physical therapy

Shriner’s Hospital & Children’s Hospital of L.A. (Day 130 of 365)

Monday, March 29th, 2010

Our day started today at 4am. We got up pretty early to get to Shriner’s Hospital in L.A. After getting the car packed and everyone fed and ready we departed around 6am on our way to Cali.  We arrived there around 11am. We are blessed to have Shriners Children ‘s Hospital in our life.  Taylor & Erin are both being seen by the Orthopedic Specialists for their hips & legs. Taylor has already had some pretty involved surgeries and now it seems that Erin is the next one up. Since I am only one person, I have chosen to concentrate on one child at a time when it comes to any advanced or involved surgeries and now that Jorden’s eye surgery is finished…it is time to figure out what Erin needs to improve and assist with making it less painful for her to walk.

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Meet Jorden Little (Day 116 of 365)

Monday, March 15th, 2010

Meet Jorden Little

Jorden is 12 years old. He is the twin brother to Erin. He was born on April 30, 1997.  The twins were originally supposed to be born on August 18th.  They were both born at 24 weeks gestation, and Jorden weighed in at a whopping 1lb 15 oz. He was the first to be delivered by normal birth. The following day after birth, he had an ultra sound done on his brain to find that he experienced a bleed on his brain that was labeled as a grade III bleed. (1 being least severe to 4 being most severe). Jorden experienced many different challenges the first couple months of life such as difficulty breathing, jaundice, and also was diagnosed with ROP (retinopothy of prematurity in both of his eyes) He was on oxygen for nearly 1-1/2 months. The first couple of months in the Neonatal intensive care unit Jorden had a few different surgeries such as: a bilateral hernia removed, laser surgery on both of his eyes due to the ROP, and one of his main veins in his arm grew around his main I.V pick line which caused the Doctor’s to go in and remove the I.V line by surgery, which caused the entire vein to be removed. (I have been told that this is something that hardly ever happens). Jorden was in the NICU for nearly the first 2-½ months of his life. He was sent home using a heart and breathing monitor for the next 6 months of his life.

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Meet Erin Little (Day 113 of 365)

Friday, March 12th , 2010

Erin is 12 years old. She is the twin sister to Jorden. She was born on April 30, 1997.  They were originally supposed to be born on August 18th.  She was born at 24 weeks gestation, weighing 1 1b and 11 oz. Erin was born second and was delivered breech. Like Taylor, Erin also experienced a grade IV bleed on her brain (1 being least severe to 4 being most severe). She experienced difficulty breathing, jaundice, and also was diagnosed with ROP (retinopothy of prematurit) She was on oxygen for nearly 2 months and was jaundice. Erin was in the hospital for nearly 3 months. Overall, Erin did well during this time for a baby who was as small as she was. She required no surgeries, no seizures, or no other complications at this time.

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Meet My Taylor LIttle (Day 111 of 365)

Wednesday, March 10th, 2010

I have had many people ask me about how cerebral palsy has effected each of my children…and I realized that I have not given a background of each of them which includes medical and developmental history so I thought I would start today! Read More

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Taylor Tells Us About Her Day (Day 93 of 365) Entry 2

Saturday, February 20th, 2010

Taylor is really funny when she has something to say. She can be very dramatic and animated. I thought I would give you a little taste of how she tells us a story. Quite often, she has plenty to say…sometimes too much. It’s hard not to smile regardless of how serious her story may be to her. Here’s an example of what her stories are like. Hope you enjoy as much as we do. Oh, and you might want to have some time when watching…they  tend to take a bit! Read More

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